the best brand for ivig?

[albmum]

Hello everyone

Having a kid with pandas is difficult dealing with but living in a country where docs never heard of it is horrible.i live in albania and from two years my son has been manifesting lots of symptoms that lead to pandas/pans.He is on benzil penicillin benzatinic(injection done every 21 days) from a year now.sometimes he is great and some not. I have read loads of useful information in this forum thats why I want your advices concerning ivig.

I would be grateful if you answer.

May I buy ivig online and is it safe?

Does it need any special delivey?

which is the best compamy producing it?

Do you do abx before it and after it?

Thanx

[beeskneesmommy]

You need a prescription from a Dr. in the USA for IVig. It is an intravenous product that must be administered under medical supervision as there is risk of serious side effects. Most people bring their kids to "in-house" with their specialist, or have a pharmacy come to their home (i.e.: Med Pro in Raleigh, NC). Gamunex is the only product that is approved for neurological disorders, as far as I know. After much research, I feel that it is the best product, with the least amount of risk for other human infection and it is one of the only products that effectively filters or decreases the risk of "prions". These are tiny critters that cause extremely serious disease such as, but not limited to "Mad Cow disease". That being said, the transfer of prions during IVig is very, very rare. I strongly suggest that you have a telephone consult with a specialist in the USA. Dr. Kovacevic and Dr. Trifiletti both do phone consults. Below are their websites. Hope that helps, Kath

 

http://webpediatrics.com/index.html

 

http://www.site.neurokidsr.us/

[albmum]

Thanx Breesknees !I will try contacting both of them .