HELP! Any South Florida PANDAS MD's?

[Cleopatra]

We live in South Florida Palm Beach/Broward County area and need to find a PANDAS MD. We have been to see Dr. Murphy in St. Petersburg (primarily for a research appt. and partially for a clinic appt. which gets us an audience via email and phone with Dr. Murphy at this point), but, that is 4.5 hours away and I am wondering if anyone here knows of someone with experience who is closer to me? We have also been to NIMH (did not get accepted to the IVIg study, but, also gets us an audience via email and phone for questions with Dr. Grant) and are currently awaiting scheduling for our first IVIg treatment.

 

The problem is that I know more about PANDAS than our pediatrician who is the "captain" of our ship. I can email these experts and our pedi can call these experts for counsel, but, I am the one explaining things, diagnosing and pushing for treatments. My pedi is FINALLY on board and doing what I ask, but, it is extremely nerve-wracking for me to be in charge of this hot mess. I am not an MD (although, some days I feel like one!).

 

Any names out there????

 

Thank you in advance!