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Quick short-lived flares during overall improvement?


EmilyK

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I'm really pleased with DS' progress this past month. Once in awhile we have a day or half-day of flare up - hypermotoric, appetite/sleep issues, some OCD but to a lesser degree, minimelt (20 minutes instead of 2 hrs), and then he's fine later that evening or the next day. It's like really fast flare ups. Is this common? I wonder if it's a briefer reaction to an exposure now that he's on a good treatment plan?

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I'm really pleased with DS' progress this past month. Once in awhile we have a day or half-day of flare up - hypermotoric, appetite/sleep issues, some OCD but to a lesser degree, minimelt (20 minutes instead of 2 hrs), and then he's fine later that evening or the next day. It's like really fast flare ups. Is this common? I wonder if it's a briefer reaction to an exposure now that he's on a good treatment plan?

 

Yes, we saw some of the same pattern . . . many of us here call it "sawtooth healing." There are so many components to the healing and the impact of the meds and supplements, so your "off" days could be attributable to any number of things, including re-exposure, allergens, bacteria die-off, gut bacteria imbalance, histamine regulation, even maybe intracellular bacteria release as biofilms get broken down naturally or as a result of med and/or supplementation.

 

I also think sometimes we forget that our kids -- even pre-PANDAS or post- PANDAS -- will sometimes have "off" days just as a natural response to growing up. Whether that's hormonal or what, I don't know. But maybe the PANDAS lenses we tend to wear exaggerates or makes us hyper-aware of those temporary differences? :unsure:

 

Glad you're seeing generally positive things! Happy New Year!

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