PowPow Posted December 4, 2012 Report Share Posted December 4, 2012 I am looking for info on anyone who has tried this immunosupressive (or something like it) for PANS. Thanks. feel free to PM me if you prefer. Link to comment Share on other sites More sharing options...
Kathy4Him Posted December 4, 2012 Report Share Posted December 4, 2012 (edited) My son has finished 3 weeks on cellcept and started week 4 today. Dr. started him on 500mg in morning. 2nd week he took 500mg in morning, 500mg in evening. 3rd week he took 1000mg in morning, 500mg in evening, and today he took 1000mg in morning and 1000mg in evening. He will remain on 2000 mg for at least 90 days provided he can tolerate it. His Dr. uses it for autoimmune diseases/illnesses. It does take a few weeks to months to work. He is also on prednisone and zithromax. Please feel free to pm me if you have questions. Kathy Edited December 4, 2012 by Kathy N Link to comment Share on other sites More sharing options...
PowPow Posted December 4, 2012 Author Report Share Posted December 4, 2012 how is it going so far? side effects? improvement? I will pm you also Link to comment Share on other sites More sharing options...
Kathy4Him Posted December 5, 2012 Report Share Posted December 5, 2012 Pow wow...I sent you a pm. Let me know if you do not receive it. Link to comment Share on other sites More sharing options...
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