landamom Posted December 1, 2012 Report Share Posted December 1, 2012 I picked up some liquid mb12 for my dd8 yesterday and have not started her on it yet. I was wondering if there is any advice for how to start ... low dosage, anything to look for etc? She is PANS but also has compound hetero MTHFR gene mutation. Thank you! Link to comment Share on other sites More sharing options...
LNN Posted December 2, 2012 Report Share Posted December 2, 2012 Are you using only methylB12? For MTHFR, you need 5-methylfolate plus methylB12. But when we started, we put 5ml of water into a medicine cup (the one that comes with any OTC medicine) and added one drop of methylfolate. I then dissolved 1/2 tablet of methylB12 (500mcg) into the cup and had DD drink it. Did this for about 2 weeks, then built up to 2 drops, then 3. Three drops turned out to be too much. We've backed down to 1 drop plus 1 whole tablet of methylB12. But your needs will be different. Best advice is to start slow. If you see any symptoms go away (rages, mood swings, depression, self harm) and then come back as you increase dose, that's a sign you may have gone above what she needs. You can then back down and hopefully see improvement at the lower dose. You may also find it helpful to avoid things with regular folate - fortified cereals, multivitamins... Link to comment Share on other sites More sharing options...
landamom Posted December 15, 2012 Author Report Share Posted December 15, 2012 Hey Laura, I found this product and was wondering if it sounds good to you? I saw that you use a liquid 5-MTHFR and the pill form of b12. My dd is so picky and won't take anything dissolved from a capsule so I thought this combo liquid might work? Thanks for your thoughts! http://www.seekinghealth.com/liposomal-b12.html Link to comment Share on other sites More sharing options...
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