Help me understand PANS

[momma2sethandjiji]

Sorry to be a board hog. I am trying so hard to get a grasp on this, so I can be armored for our next local doctor appointment. I have been thinking back. My son's first episode followed pneumonia. This was a bacterial pneumonia, and his symptoms following that were more physical. However, he was diagnosed with a virus shortly before the pneumonia which they thought induced the pneumonia. That leaves me asking that perhaps the preceding virus induced the leg pain, lethargic like symptoms versus the pneumonia. I say that because he had two episodes of confirmed strep following that over the spring and NEVER had any sort of exacerbation. In Sept, he had another "mystery virus", and the OCD symptoms, headache and eye tics followed this starting almost overnight while we are on our family vacation. If his trigger is viral, would/could that explain why he is not responding to the two week trial of Augmentin. I know that does not necessarily explain his worsening of repeat whispering or the worsening after the initiation of the steroid burst. Asking, again, because we are now on day 4 of observation, and nothing is better but still worse from the point of exacerbation when initiating both meds. First downward turn started day 2 of antibiotics and then again day 2 of steroid burst. It has remained at "that" baseline since, again on day 4 of observation following 14 days of Augmentin. Thanks again. I hope and pray that I can find a doctor whom will know the answers to my questions and help us through this. I hate the uncertainty of this whole process.

[Dedee]

This is just my opinion.....If he has had pneumonia, it was most like Myco p. because this is the most commonly community acquired pneumonia. He very well may be triggered by a virus, or strep, but he may also have an under lying myco p infection. Augmentin does not treat myco p which would explain why he is not getting better. He would need either Zithromax or preferably Biaxin. You should have IgG and IgM Myco p titers ran to see where things stand or you could just see if your physician will switch to Biaxin. As always, my best advice is to make an appointment with one of the top PANS specialist. This is the best way to get to the bottom of things. Best of luck.

 

Dedee

[Mayzoo]

"Perhaps viral trigger-how does abx help that?"

 

 

Some antibiotics have an anti-inflammatory property. The antibodies create the inflammation which creates many of the symptoms. The antibiotics help combat the inflammation thus reducing many of the symptoms.

 

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Hopefully this helps your progress in understanding. Each of has a unique experience it seems, so it is very hard to completely grasp.

[momma2sethandjiji]

Thanks so much for the info. Makes complete sense.