urina

[Kimflow]

Hi,

I have searched old posts and now I am hoping someone might have something to suggest to me. I am out of ideas.

When the PANDAS started, we had some intermittent urinary dribbling during the day. A panty liner sufficed.

After first HD IVIG, everything remained the same.

We started Chinese herbs in addition to antibiotics/antifungals,antiparasitics.

Everything was really shaping up and then added artemesia and it all fell apart. urinary dribbling increased at this time requiring regular flow women's sanitary napkins. The panty liner no longer was adequate.

I stopped Chinese herbsd thinking they may be high in oxalate causing urinary issues to flare.

We had another HD IVIG and did Ibuprofen for several days with no relief to the urinary incontinence.

And today, the pads are no longer working. This is a child who has been potty trained for forever and also still goes on potty and pees and poops.

 

What is this???? Any suggestions. I think I will start back with the herbs to see if that changes things for the better.

I have read about neurogenic bladder and interstitial cystitis being connected with lyme. I also know that the urinary dribbling for us started with the PANDAS. And what is most important is that he thank goodness has no urgency issues or incontinence at night. So I would believe that means it is not IC.

 

I am beside myself as we are once again going backwards but I keep telling myself it could always be worse.

Please help me figure this out.