Moving from treating lyme to PANDAS

[momcap]

Sorry, in thinking more, I realize you are in a state of emergency right now.

 

Since they are cutting you off, and you've had this severe relapse as a result, maybe an IVIG? I think you've not had it before for this child.

Have you taken him back and told them about the huge relapse?

Wish you better days-

 

I appreciate any advice, for the present emergency or for down the road! Yes, I took him back to show doc the huge relapse, i.e. my non-functioning child, and DS was happy, cooperative, and well-mannered at the docs. No wonder he thinks I'm nuts. DS continues to be hypomanic which is so much easier to manage! OCD is really bad though. We're seeing a PANDAS-friendly Canadian doc in 2 weeks. I'm really hoping something comes of that appt, and I think we are finally ready to consider IVIG if that option becomes available to us.