JenniferG Posted October 8, 2012 Report Share Posted October 8, 2012 I (once again) am in dire straights... Meg has been ill for weeks. C Diff. The last 2 cultures were negative. But we can't get back on Augmentin....she starts with C Diff symptoms. GI passes me to ID who passes me back to GI who then passed me back to Pedi. Left messages and emails for Dr. T with no response. I have tried Homeopathy....they won't give strep nosode....just treating anxiety and OCD. She is in bed with a fever and her right gland is so swollen you can see it. Her throat hurts. She is very pale and lethargic. Has been out of school since Sept 13. I don't know where else to turn. I have been loading her up with Florastor and Culturelle in hopes that I can resume antibiotics for a short term. I just know anymore and feel like I am literally fighting for her life. I am SO scared of strep going to her heart. Link to comment Share on other sites More sharing options...
peglem Posted October 8, 2012 Report Share Posted October 8, 2012 I (once again) am in dire straights... Meg has been ill for weeks. C Diff. The last 2 cultures were negative. But we can't get back on Augmentin....she starts with C Diff symptoms. GI passes me to ID who passes me back to GI who then passed me back to Pedi. Left messages and emails for Dr. T with no response. I have tried Homeopathy....they won't give strep nosode....just treating anxiety and OCD. She is in bed with a fever and her right gland is so swollen you can see it. Her throat hurts. She is very pale and lethargic. Has been out of school since Sept 13. I don't know where else to turn. I have been loading her up with Florastor and Culturelle in hopes that I can resume antibiotics for a short term. I just know anymore and feel like I am literally fighting for her life. I am SO scared of strep going to her heart. Is it strep? Has she been tested for epstein-barr? Link to comment Share on other sites More sharing options...
JenniferG Posted October 8, 2012 Author Report Share Posted October 8, 2012 She has been tested for EBV. It was negative. Lyme neg. HSV neg. ASO/DNASE neg. Link to comment Share on other sites More sharing options...
peglem Posted October 8, 2012 Report Share Posted October 8, 2012 So sorry your child (and you) are going through this. How about trying the natural stuff, like oil of oregano? Clearly, she has some sort of infection, if her glands are swollen. Link to comment Share on other sites More sharing options...
JenniferG Posted October 8, 2012 Author Report Share Posted October 8, 2012 I have Olive Leaf Extract 900mg capsules and Oil of Oregano 460mg. How much would you give? She is 56lbs. Link to comment Share on other sites More sharing options...
kos_mom Posted October 8, 2012 Report Share Posted October 8, 2012 Any chance it could be a CMV infection? That can cause a mono type illness. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001594/ Link to comment Share on other sites More sharing options...
LNN Posted October 8, 2012 Report Share Posted October 8, 2012 Asymmetric swollen glands is one symptom of bartonella. My son always had this symptom. Always his left side. Swollen lymph node in his groin, left side too. I think I've sent you the name of my LLMD before, don't want to harass you about it. PM me if you want it. My DD had EBV this past winter. If you think it could be viral, l-lysine helped her tremendously. Garlic pills can also help ward off yeast issues. Just make sure you get odorless. Link to comment Share on other sites More sharing options...
trggirl Posted October 9, 2012 Report Share Posted October 9, 2012 Have they treated the C. Diff? Link to comment Share on other sites More sharing options...
JenniferG Posted October 9, 2012 Author Report Share Posted October 9, 2012 Have they treated the C. Diff? She had an allergic reaction to the Flagyl. The tested her after 8 days on Flagyl and then again 1 week off. Both negative. I have tried 2 times to restart Augmentin. On day 2 she gets diarrhea and nausea. So I stop and bump up Florastor and her belly symptoms are better. She now has a temp of 101.2 on Tylenol. Was 102.9 last night before Tylenol.. Am i at a point where she needs Vancomycin or IVIG???? Link to comment Share on other sites More sharing options...
trggirl Posted October 9, 2012 Report Share Posted October 9, 2012 I would definitely ask about Vanco. My dd developed Clostidium also but her symptoms stopped upon discontinuation of Augmentin. A number of months later we tried Augmentin again and she tolerated it this time with Florastor. Honestly though with that temperature and her symptoms, I would be at the doctor immediately asking for broad spectrum blood work, stool work and urine. She could have any number of things going on including Clostridium, Strep, etc. And maybe it's just something minor but they need to test IMO. Good luck. Link to comment Share on other sites More sharing options...
JenniferG Posted October 10, 2012 Author Report Share Posted October 10, 2012 I would definitely ask about Vanco. My dd developed Clostidium also but her symptoms stopped upon discontinuation of Augmentin. A number of months later we tried Augmentin again and she tolerated it this time with Florastor. Honestly though with that temperature and her symptoms, I would be at the doctor immediately asking for broad spectrum blood work, stool work and urine. She could have any number of things going on including Clostridium, Strep, etc. And maybe it's just something minor but they need to test IMO. Good luck. I know!!! I'm SO frustrated. Inge Dis passed me to GI, who then passed me back to Inf Dis (seriously). They wouldn't help so GI said "you are out of my league. Call your Pediatrician." Unbelievable. We saw an Osteopath today and has done some changes. I have left Dr. T an urgent message 3 days in a row.....I know he is SUPER busy. But, Meg is SUPER sick. Link to comment Share on other sites More sharing options...
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