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Posted

Hi all. I have posted about Cigna denying us, now for the 2nd time w/ Latimer and a different dx. It is clear from their recent mass denials that we are not likely to get approved. I wanted to put the word out that not only are they denying IVig, but it looks like they are going to cut off Plasmapheresis/PEX as of October 15th, according to a reliable source in a PANDAS specialist's office. I have thought about it for a while and decided to put the word out in case anyone needs to get with it fast. As it is, we will be paying OOP for IVig within the next several weeks.

Posted (edited)

Yes, I was there on Thursday and heard the same thing. Dr. Latimer seemed to disagree. So, it's all speculation really. However, I do know that they review and change their policies on October 15th, which seems really wrong since our contracts run Jan.-Jan.

 

We are having the hardest time getting approval for ds17 who has lost 35lbs and continues to lose ground. CIGNA said that PEX is an elective procedure. Dr. L. filed a complaint with the Maryland Insurance Commision. If/when we get approval, we will start the process for dd12. I don't want to ask for two at once.

 

All speculation aside, I, too, want my kids approved before October 15th, just in case.

 

I'm editing my post to add this: The whole thing makes me sick, literally turns my stomach. :(

Edited by 1tiredmama
Posted

I am sorry for your trouble. Glad to hear Dr. L seemed to disagree. That did not make a difference for us. We will be going in and paying out of pocket this month. Just cannot wait for Cigna to continue their shennannigans. I hesitated to post this but when I was told about the PEX, that person said "Oh, I better call those people and get them in quickly"? It worried me, for those that are on that track so I stuck my neck out with this.

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