Agnes26 Posted August 14, 2012 Report Share Posted August 14, 2012 DD7 has PANDAS diagnosis and has had IVIG. As a child, I had strep like it was my job. Many, many times a year. I had scarlet fever in grade school. As a teen, I had pericarditis due to a missed strep infection. Honestly, should have probably had my tonsils out. As an adult, never got strep until my daughter went to kindergarten. Have had it three times in 1.5 years. My question is this: Would it make sense to have my tonsils out now? I've had several cultures, all come back negative, but is it possible that I have strep hanging out in the recesses of my tonsils unreachable by a swab? Link to comment Share on other sites More sharing options...
beeskneesmommy Posted August 15, 2012 Report Share Posted August 15, 2012 I would get blood work done if I were you. I was also a chronic Strep kid and it is believed that I had "mild" PANDAS as a child as well, although back then it was not a diagnosis. Anyway, had my tonsils out at age 17. I am now 48 and have had 2-3 + Strep cultures when My son, age 5 has been infected. We pass it back and fourth. Recently, I had titers drawn after another "cold" and they were abnormal. Dr. B put me on 30 days of Augmentin and my son showed great improvement during that period of time. I suggest that you get your son's PANDAS specialist to make you a patient as well, so that your situation can be approached from that angle...good luck and hang in there. Keep fighting the good fight! Link to comment Share on other sites More sharing options...
Agnes26 Posted August 16, 2012 Author Report Share Posted August 16, 2012 I would get blood work done if I were you. I was also a chronic Strep kid and it is believed that I had "mild" PANDAS as a child as well, although back then it was not a diagnosis. Anyway, had my tonsils out at age 17. I am now 48 and have had 2-3 + Strep cultures when My son, age 5 has been infected. We pass it back and fourth. Recently, I had titers drawn after another "cold" and they were abnormal. Dr. B put me on 30 days of Augmentin and my son showed great improvement during that period of time. I suggest that you get your son's PANDAS specialist to make you a patient as well, so that your situation can be approached from that angle...good luck and hang in there. Keep fighting the good fight! Thanks for the advice. I will call to have blood work done. Link to comment Share on other sites More sharing options...
minimaxwell Posted August 17, 2012 Report Share Posted August 17, 2012 you might enjoy reading from Dr Goodman http://www.psychologytoday.com/blog/attention-please/201102/evil-pandas-scourge-the-brain Link to comment Share on other sites More sharing options...
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