Important PANDAS meeting in MA

[minimaxwell]

Hello,

Not sure if you have seen this post:

 

FYI from the IOCDF..."Research into the cause and effects of PANDAS and PANS is still in the infancy stages. Many parents have ideas about what is working for their children. As IOCDF works towards fundraising for research into PANDAS and PANS, we are interested in hearing thoughts from parents about what questions they feel are unanswered. These ideas may be used in future research funding, or may simply be suggested to researchers independently. This brainstorming session is organized and moderated by Dr. Michael Jenike, and will be attended by another IOCDF member as well. It is for parents only. Parents who are unable to attend, may also submit thoughts or concerns to Susanb4312@gmail.com in advance of the conference, and they will be included. This session is not intended to answer parent questions about specific cases, but rather to begin the process of gathering observations from those who are closest to the illness. This session will be held Saturday at 9:45 - 11 am in the Old Town Room, on the 2nd floor of the Marriott. For information about the IOCDF Conference in Chicago, please check http://www.ocfoundat...org/conference/"

 

Cathy Witkos, Lisa Hart and I thought we could have our own brainstorming session. I will then present it to Dr Jenike and Susan Daily from the IOCDF. Lisa has generously agreed to host at Woodland - http://www.woodlandg...home.aspTuesday 7/31 at 6:30PM.

 

Please let me know if you can make it. Hope to see you for some drinks,appetizers and what is sure to be meaningful conversation. The room Lisa has reserved for us holds 14 people so please let me know ASAP.

 

Yours in Health,

Tiffani

Edited July 27, 2012 by minimaxwell