Sleep apnea?

[bulldog24]

I think my 6 yo PANDAS /Lyme kiddo has sleep apnea. He was sleeping in my bed and I noticed his breathing was not regular and had large moments of not breathing at all. Then a few times he made some gasping/choking noises and was really restless all night. I have sleep apnea so I recognized this right away.

 

the pedi said it was a possibility and some kids who have sleep apnea also have adhd due to lack of sleep. he hasnt slept through the night in a long time and also has insomnia.

 

The pedi said that a sleep study is needed. If he has OSA he should get a t&a which should fix the apnea and POSSIBLY help the PANDAS.

 

He said that even though the tonsils might not appear to be enlarged their could be enlargements that can be seen. I am a bit worried about where we are going as they are not known for being PANDAS friendly,infact they are very BAD.

 

But I figure this is a sleep consult and we have a dx from the NIH.

 

PANDAS is NOT in question.

[Nearlydoc]

We had dd then 6 tonsils out last fall and it helped tremendously with breathing/ sleeping and even some with behavior. This was how we discovered the PANDAS because the behavior on the post op antibiotics was such a marked change in behavior-- took us until December to get a diagnosis. There are lots of articles available about sleep issues and behavior.

 

Our dd had had a tonsilectomy at 3, but the dr. only did a partial tonsilectomy. He is no longer our ENT. The full tonsilectomy with Dr. Klug in Memphis was successful, and her color, mood and even growth improved after surgery. The pathology-- no surprise-- those tonsils were full of strep.

 

She has had PANDAS a long time and is still in recovery after starting meds last Feb. I can't tell you the t/a "fixed pandas" but it did bring her better health.

 

Do you have an ENT you could trust in your area? Could you go see one before putting your 6 yo through the sleep study? Our dentist was also a huge advocate b/c our dd's teeth were effected by her mouth breathing and was actually the one who sent us and a recommendation for t/a to our new ENT.

 

Hope this helps.

[colleendonny]

There were some names at the Pandas Parents meeting for docs, (PANDAS friendly) who do T&A. Do you need the names?

[minimaxwell]

Dr Keamy at Mass Eye and Ear is very PANDAS friendly.