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I have heard mention of Dr. Michael Jenike and of some work being done at Mass General with PANDAS. We are currently traveling to CT, but treating the OCD locally. We are not seeing much improvement from the treatments based in CT, so it has prompted me to look more into treating the OCD as best we can at the moment. That led me to the page on Mass Gen web site and they said they are treating PANDAS (I still have no doubt infection is a component for us). So I was curious if anyone has any information on what is going on at Mass Gen for PANDAS? Any one doctor actually treating it? If I missed news on this, I was most likely trying it ignore the PANDAS monster for a few months and throw myself into work since Ian is stable at about 50%, just not near 100% like I would like to see him. Thanks for any info!

 

Lisa

Posted

Feel free to call me 508-667-0574. we are currently working w/ dr. Jenike and Dr. Geller to form a PANDAS team at MGH.-tiffani

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