Hdivig & weekly Scig

[Jtsmama]

Neuro & Immuno have finally agreed ds needs HdIvig, abx are no longer the fix. Because he is Immune Deficient, already infusing Hizentra 6gm/wk. Dr recommended staying on Hizentra & infusing HdIvig at 1.5gm/kg every month. History of aseptic meningitis with Ivig at low doses, thinks this might prevent this from happening. Anyone else infusing this way? I called docs, centers, ivig providers, insurance..etc. No one has ever heard of this! Also what do you bill under? Any info greatly appreciated!!

[peglem]

I don't know what Hizentra is, but my daughter gets 1.5g/kg IVIG every three weeks and does pretty well on that. Her 1st 2 IVIGs, 2 years ago, were low dose though and they made her worse-headaches and inflammation.

[Jtsmama]

Hizentra is weekly ivig given subq, small doses to keep the Igg levels from dipping & spiking. The total monthly dose is only equal to 0.5g/kg, which is the recommended dose for Pidd patients. HdIvig would probably be the product Gamunex.