How ironic

[colleendonny]

So, the other day I got a phone call from the school nurse. She was looking at my DD's emergency card from kindergarten registration. She knew what ehrlichiosis was but had never heard of PANDAS. So, I had about a 10 minute conversatoin with her about PANDAS and what the symptoms are and what Kayleigh's symptoms were. She had never heard of it and said that she would love more information about it. I sent her an e-mail of me explaining it and a link to a bunch or sites and articles and asked her to pass it on to anyone and everyone!

 

This was on Thursday or Friday.

 

Today, I get an e-mail from a woman I have never received an e-mail from with the subject as PANDAS. She goes on to tell me that she talked to the school nurse about her son, who has mild autism, about PANDAS because he had a sudden onset a few days ago! They live in the same town as us.

 

And MASS moms, you'll love this: She went to Children's hospital and was there Thursday night until Friday. They thought he was reacting to a new medicine that he was on. But he had a bad belly ache in the middle of the night and had vomited the previous night. The nurse in the middle of the night decided to give him a strep test and it was positive. The team there said they may be dealing with PANDAS. I about lost it when I read that! But they wrote on her discharge papers that it was Acute toxicity.

 

I couldn't believe Children's even spoke of PANDAS.

 

Just thought I would share how ironic it was that I just informed the nurse of this last week, and it's already helping! I hope word gets out even more on PANDAS and helps all of our children.

[ptcgirl]

Educating the public (and doctors) is crucial. So glad u had the talk with the school nurse.