Strep back or just pandas flare?

[Kimflow]

Well, after multiple courses of antibiotics fail to control the PANDAS/strep, we went to clindmaycin for 3 weeks.....I would say about 8 days in as usual we started to see slight breakthrough symptoms. Then about 14 days on clindamycin, I saw the eye squinting and the verbal triggers come back but atleast the verbal triggers were easily worked through....with no tears. Now we took the last clindamycin pill today. His lips are again irritated(I have come to view that as indicator of his body fighting PANDAS) and he had several tearful upsets for triggers words so far this morning and his choreiform movements have returned.

 

I am beside myself. We are to go on to Rifampin now for 2 weeks. I hope that works because Clindamycin was supposed to be the "bomb".

 

We are waiting on IVIG approval and tonsillectomy.

 

Like I said, I am just beside myself having rode a rollercoaster again.

 

I talked to a Lyme doctor the other day who knows PANDAS too and he thought a good treatment for PANDAS was Augmentin daily and then Bacillin shots either weekly or monthly.

 

Big deep breath. I know there is not much anyone can see but just keep plugging along. I think once the two weeks of Rifampin are over, I will ask to go back on Augmentin daily until tonsils out and IVIG.

 

Kim

[Mayzoo]

Symptoms can wax and wane for numerous reasons, frequently they are unknown reasons. If he was exposed to another ill child, his body could be fighting that off causing what you see. Go to the doc and get him swabbed (or buy the at home rapid tests) just so you can rule out that one aspect. After that, it usually is just a matter of riding out the episode. Watch for signs of another illness, and if you see none, then just try to ride it out for a few more days. Is he on ibuprofen already? That may take the edge off if he is not.