Un-pausing our pause of Lyme treatment

[SSS]

I think I threw my guts on this forum last month about my dd becoming violent at home- escalated to the point of unacceptable.

It was happening on and off antibiotics.

Went off antibiotics, started Risperadol low dose, things got a lot better at home (this is the girl who is perfect at school.)

I was giving GSE (for yeast) and OLE, probiotics, support vitamins- we seemed 'okay' with fits and starts, but shorter, not where we were (he!!)

 

At the 1 month mark, about 5 days ago, her fevers returned, along with complaints of leg, feet, and eye pain, behavior again escalating.

Think I found her Lyme cycle!

Can't find mine for the life of me.

 

So back to the LLMD in a week and a half, piggy backing our appointments.

In the meantime, not sure what to do- put her back on Amox. (which was where we left off) and it is suppose to go with Biaxin, which I guess I'll try to add back in too, over the weekend.

Still giving GSE.

So, that's our update. Still on low dose Risperadol - seems to be either tamping down her very elevated dopamine and seratonin - or I don't know how it is helping, but from where we were, we can't go back to the violence at home.

Be interesting to hear what the LLMD will say...

Thanks for listening, that's our update. I guess you can run, but not hide from this disease.

[LNN]

I'm glad you're all getting a reprieve from the insanity. I admire your courage at being willing to take up the battle again. My version of prayers are with you - hopefully with the new meds on board, you'll be able to treat without the whiplash of severe mood herxing. You're in my thoughts!

[fightingmom]

As you know, I am new to finally having diagnoses in this journey. However, I have lived through much of what you have written about for years and I truly empathize with you.

 

I think heading back down the Lyme trail is probably wise -- though, I'm sure it leaves you uneasy and exhausted.

 

If you have already worked with that combination of meds before, and you have them, I don't see any reason not to start that up again. Hopefully it will bring you relief and you will start to see improvement.

 

Hang in there.

Edited May 16, 2012 by fightingmom