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Posted

Hi-

I started Tindamax this last month-( and Bicillin shots, but I know this is from Tindy- on no other 'killers')

1st time on was 3 days on/4 days off.

2nd time 'on' I pushed myself because of the full moon- I went 9 days in a row on, because of the full moon,

stopped Sunday.

I have a constant, horrible head pain for the last 5 days or so- thought it would leave after going off Tindamax,

here it is Monday a.m.,

and I'm in trouble.

Stabbing behind left eye, pain all over head when I stand- it has been like this ongoing.

I have been doing the Lyme detox stuff, lots of Advil, tried some Norco (pain pill DH had)

Nothing, can't shake it.

My regular Dr. is a joke, so to speak, and my LLMD is very busy-

Any advice? Go to walk in clinic and ask for something? What?

Thank you,

desperate in CA,

S & S

Posted

So sorry you are dealing with this! I think you should call your LLMD and INSIST on speaking to him. You shouldn't try to self-treat or go to someone who has no clue about Lyme. Be the squeaky wheel - its okay.

 

This may not have any bearing on your situation, but I had headaches for 1 1/2 years before figuring out that it was a gluten/dairy sensitivity. Can't hurt to play with your diet while you wait for a call back. You never know what's interacting with what.

Posted

i'd definitely push to see the LLMD. my integrative MD, when i first saw him, was quite sure my history of migraines was related to TBI. with treatment, the migraines went away. . . until a few months ago. he then believed those to be related to a virus -- they were different than my usual history -- severe! with treatment, those have cleared. i very much like my new neurologist - but basically got a shoulder shrug. i am a strong believer in the TBI/infection/migraine connection.

 

 

anyway, at that time, i did get some advice i'd never heard that seemed to help. put a cool washcloth on the base of the back of your neck. i think it soothes the blood vessels coming in and out of the brain. it did seem to help.

 

Good Luck!!

 

 

 

Posted

Thank you very much-

 

I did call my LLMD, who takes quick phone calls in the morning between 8-9- for free, and, their office service is pretty good, compared to other LLMD offices.

 

Gave him the run down, trying to explain look I'm not a drug addict, but can I please get a pill or two of something called in to try and kick this out?

He said he would call me back, haven't heard anything yet, maybe he called something in-

I think I told him when I took one of DH's Norco pills (which I hated how it made me feel, but dulled it for awhile, then came back),

I might have stumped him.

 

I tell you what- I feel like that Tindamax broke open some old, horrible clusters of gunk- powerful--also feel like I'm in a viral flair of some sort, which I plan on getting into/testing at my next appt. in 2 weeks-

Took some Lysine and Lauriciden I had here last few days- but ugh, pretty much feel like junk. I don't feel like taking anything today, next Bicillin tomorrow morning.

Thanks for listening and helping, I will try the ice packs on my neck--

xxoo

Posted

Oh, and I've been 100% gluten free for about 3 months now- tested for high intolerence to gluten, and do feel like my digestion is better now- I'm low sugar-

But please, if I have to give up dairy 100%, OMG, kill me now, lol. I don't have a lot of it, no yogurts or milk drinking, but....

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