Ataloss12 Posted May 2, 2012 Report Share Posted May 2, 2012 My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice Link to comment Share on other sites More sharing options...
Haileymadison Posted May 2, 2012 Report Share Posted May 2, 2012 My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice I live the Southern Indiana, about 20 minutes from Louisville,KY. My dd7 had 1 exacerbation in September of 2010. We caught it quickly and is doing great almost 2 years later! PM me if you get a chance. Link to comment Share on other sites More sharing options...
Ataloss12 Posted May 2, 2012 Author Report Share Posted May 2, 2012 My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice I live the Southern Indiana, about 20 minutes from Louisville,KY. My dd7 had 1 exacerbation in September of 2010. We caught it quickly and is doing great almost 2 years later! PM me if you get a chance. We live in Southern Indiana, as well! Our 5 year old daughter was just recently diagnosed by Dr. Trifiletti. We have a consult with him tomorrow to discuss treatment plans. I am hoping that we caught it early enough, as her onset was two months ago. I will send you a message Link to comment Share on other sites More sharing options...
thereishope Posted May 2, 2012 Report Share Posted May 2, 2012 (edited) . Edited September 30, 2019 by Vickie Link to comment Share on other sites More sharing options...
butterflymom Posted May 3, 2012 Report Share Posted May 3, 2012 (edited) = Edited October 5, 2015 by tampicc Link to comment Share on other sites More sharing options...
Agnes26 Posted June 4, 2013 Report Share Posted June 4, 2013 I wanted to bump this thread to see if there are still Indiana/Indianapolis meet ups. Link to comment Share on other sites More sharing options...
searching_for_help Posted June 4, 2013 Report Share Posted June 4, 2013 I'm in southern Indiana, also. 21 year old daughter with terrible OCD (intrusive thoughts) and anorexia with exercise compulsion (PANDAS). Anxiety, depression. We didn't realize it was PANDAS until about a year or so ago. Began in 4th grade with overnight bladder issues. Lots of strep back then. Working with Dr. K in Chicago now. I'm short on time right now but feel free to PM me. Link to comment Share on other sites More sharing options...
Dedee Posted June 4, 2013 Report Share Posted June 4, 2013 We live in Northern Tennessee but our LLMD is near Indy so we are there every few months. I wasn't aware there was also a PANDAS doc in that area. Good to know..... Dedee Link to comment Share on other sites More sharing options...
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