colleendonny Posted April 25, 2012 Report Posted April 25, 2012 Hi all. Was looking to get some opinions on this... DD4 has sudden onset PANDAS back in October. We got into see Dr. B 6 weeks later in CT in December. Her IgG showed ehrlichiosis. She also showed exposure to Rocky mountain spotted fever and typhus. We have since started seeing an LLMD. I just goit her results that RMSF and typhus were no longer detected. Her IgG for Ehrlichiosis has remained the same. He said keep giving her the same medicines: Augmentin 600mg, 1 teaspoon 2x per day, Azithromycin, 1 teaspoon 1x per day, and A-Bart for suspected bartonella. We are working slow on that as she was dizzy after the second day. So, she is taking one drop every three days for 2 weeks. Anyway, we did see Dr. B today for her 4th followup appointment. He asked how DD was. I said 90-95%. He tald me to discintinue the Azithromycin. But I will talk to our LLMD first... I would think that if the numbers haven't changed, I should keep the dosage the same, yes?
Orion Posted April 25, 2012 Report Posted April 25, 2012 Yes, I'd keep the dosage the same until the LLMD says differently.
fightingmom Posted April 25, 2012 Report Posted April 25, 2012 Yes, I'd keep the dosage the same until the LLMD says differently. That's what I was thinking. Maybe get the script from the LLMD because I'm betting Dr. B will not refill it if you need it since he said to discontinue.
colleendonny Posted April 26, 2012 Author Report Posted April 26, 2012 LLMD said it would be alright to discontinue... She has been on the azithromycin since the beginning on January, so 3 1/2 months. Both said to call back if symptoms reappear and either will refill the azithromycin. She is currently still on Augmentin 600mg 2x per day and the A-bart. I hope no symptoms return. But then again, she never really had the symptoms of Ehrlichiosis or RMSF...And if not I guess next step would be to retest her titers again in May with LLMD and again with Dr. B in February.
Hopeny Posted April 28, 2012 Report Posted April 28, 2012 My DD has IGG+ for past Ehrlichiosis and IGM+ for active Anaplasmosis (in addition to Lyme and Mycoplasma and elevated strep titer). She was treated with Doxy for the first two, it is the only treatment for Anaplasmosis and I thought Ehrlichiosis as well, even in children. Please double check me on that. I have not read of Zithromax or Augmentin for Lyme or co-infections, but I am not an expert. I check Burrascano's guidelines any time I have a question. He goes into detail about the coinfections and treatments, and why different abx for which. The Doxy really seemed to make a difference. Good luck.
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