MRI pics

[PowPow]

Can you contact DrT or Dr L?

You may get with Dr. T quicker, I think. I would give him an email or call.

[fightingmom]

Can you contact DrT or Dr L?

You may get with Dr. T quicker, I think. I would give him an email or call.

 

I actually did email him with a link to the photos on Friday night. Though, then I saw that his fee $400 per 15 minutes....I definitely can't afford that. I can't imagine getting out of there with anything less than 30 minutes, probably more like 60. We are already headed to a LLMD out of pocket on the 11th and a 14 hour round trip drive for that. Haven't thought about Dr. L. - I'm sure it would be similar, but I'll look into it. Thanks.

Edited April 22, 2012 by fightingmom

[PowPow]

Dr. l visits are in person, 2 hour long and very worthwhile.

We consulted with dr t a few years ago and his pricing was quite different.

Good luck. Where do you live?

Our llmd was very helpful in our daughters case, as well.

[fightingmom]

I live in RI. We have an appt to see Dr. Beals in May. There are some good ones in CT, but one has a list out as far as December and Dr. J is pediatric only, and I'm not sure how accurate this is but I read initial consult was $1000 before labs. Couldn't do that right now, we are both sick and I just got $4k in hospital bills the last few months.

[911RN]

Thanks to both of you. The purpose of the research study was for them to see how the brains of children with OCD, ADHD, Anxiety or Bipolar work while they are doing certain things. This was a fMRI and my son was playing special games through part of the MRI. They were monitoring how his brain worked during certain activities of the games. In betwee game sessions (he played the games 6 times) they took several rounds of images. They also took a DNA sample (but we don't get results of that either) and he did an IQ test the last appt (scored pretty high too and that was on a really bad day, he was mid exacerbation, I wonder what he'd score on a good day, but anyway, that's off topic). The only thing they promised us was the images and my son got paid a little over $100 (which I did not know was the case until we arrived at the first appt - but he was excited about that).

 

The CD is actually pretty cool it has a viewing software that allows me to not just look at each individual shot, but I can basically watch as the machine rolled around his brain in motion. It's very cool.

 

We do not have a neuro at the present time. However, about a month ago I emailed with one in Boston. I have been trying to carefully select doctors that are PANDAS friendly and I found his name in the list of speakers at an Autism convention, but he was actually there to speak of PANDAS. I emailed him from his hospital page and he had responded to me, but a little brief as he was out of town. He asked me a few questions which I did respond to, but then never heard back a second time. I emailed him last night the image and am hoping he will respond. I am happy to pay for the appt. I just want someone that won't dismiss me when I get there.

 

Good luck---keep us posted on what you find out:)