Spent tons of money on lab testing...

[Dedee]

My 8 year old daughter has been struggling with PANS since Nov 2010 after receiving the flu mist. She was positive for Myco p. and has been on antibiotics since that time. Last myco titers were still elevated a few weeks ago (both IgG & IgM). She has had 2 HD IVIG's and even one week of IV antibiotics as well as the constant oral antibiotics. She has slightly elevated strep titers and she is currently on biaxin 250mg twice daily which should cover both the strep and myco p. She is also on Lamictal 50mg twice daily. We recently found out that she is MTHFR positive (for mutation) but her histamine levels are normal. I finally made the decision to just go ahead and pay the money for a full Lyme and co-infection panel. I felt it would be worth the money to have a definate answer one way or the other. Hmmm, no way it could be that easy right? So the entire co-infection panel was negative. Nothing to argue there. But the Lyme western blot was a little boarderline I think. Please tell me what you think. On the IgG side, all bands were negative except for a +41. On the IgM side there was a 18+, 39 Ind, 41++, & 83-93 Ind. I realize the IgG looks very normal, but what about the IgM? The doctor who did the testing is not an LLMD but agreed to do the testing to appease me. I do have an appointment to see an LLMD but not until the end of July. We will be seeing an Immunology group in Florida in June but I doubt they will read it as anything but negative. Please tell me if you think I should keep the appointment with the LLMD in July or just stick to the current Myco p treatment and hope for improvement. I think they are planning on doing allergy testing when we go to the immunologist in June and we will hopefully get more guidance on the whole MTHFR piece.

 

I would greatly appreciate any opinions on these results.

(Going to post on the Lyme board also). Thanks so much!

Dedee

[dcmom]

dedee- I meant to pm you....

Edited April 17, 2012 by dcmom