LLMD in FL, GA, AL?

[shannon aka mommy]

My son has tested positive for IGG Myco P. and recent EBV even though he had mono 7 years ago. I'm wanting to have him checked for Lyme. Can anyone PM me a name of a LLMD in the south with a good reputation?

 

He has tics that have gotten worse on Augmentin because we thought he was PANDAS until the tests came back. We are trying to get him on the correct abx for Myco P, but have not had any luck with the Doc so far. He has many obsessions, few complusions, lots of anxiety and vocal and motor tics. He also has extreme allergy to dust. Does any of this fit with Lyme?

[michelew]

I live in Florida. I, too, thought my son had PITAND due to Myco P. My son has high IGG & IGM for Myco P., and we've been treating him since October of 2011. His Myco P. numbers have been coming down; however, his symptoms have shown very little improvement. We are currently in the process of pursuing the Lyme route, as well. We had him tested for Lyme through Quest Labs, which indicated "reactive" bands for Lyme. We're now considering trying IV antibiotics for the Lyme, in addition to continuing to treat the Myco P.

 

My son has been receiving treatment for the Myco P. from his neurologist. She is extremely open to trying anything to try and get him well, which has been wonderful. The only problem is, she has never treated anyone with the symptoms my son has, so we have been pretty much following Garth Nicolson's protocol for fighting Myco P, and now we're in the process of trying to find an LLMD to help us decide what to do next.

 

Some of the LLMD's are willing to do phone consults, so I'm hoping we'll be able to find someone willing to direct my son's treatment through his neurologist. She has been such a blessing, and refuses to give up on my son.

 

Where do you live? I'd be happy to share more of my story with you, if you're interested. You can send me a PM.