ptcgirl Posted April 5, 2012 Report Posted April 5, 2012 Just wondering if anyone had ivigs done at Usf. Does the immunologist do them for pandas kids there? Anyone have any idea?
norcalmom Posted April 6, 2012 Report Posted April 6, 2012 I'm not in that area, but Dr Tanya Murphy is. I'd try to see her if I was down there. She is a pandas specialist, and could direct you to, or give you, IVIG if you really need it. I think she focues on antibitoics and very throughout testing first - but (and if anyone has seen her - correct me if I'm wrong) does do IVIG as well.
Dedee Posted April 6, 2012 Report Posted April 6, 2012 We have seen Dr. M for two of our children (soon to be three). She made the recommendation for IVIG for our daughter but we did the actual IVIG local. She sent the letter of recommendation to the insurance company and to the pediatrician & Integrative Medicine Practitioner. I don't know if they actually do it there or not. Dr. M. usually likes to start out with antibiotics then if you get no relief, she will move to IVIG if you ask about it. She is very thorough, very methodical and caring, but tends to be a bit conservative so I doubt you would get right on the IVIG wagon the first visit. Don't get me wrong, we love Dr. M and she has been wonderful for our kids. Just saying if you are looking for the type of doctor that will jump right on IVIG your first visit(and I can understand that), you may try one of the other specialist. It's really great for PANS parents to have different types of specialist that we can go to, once we have educated ourselves, to help us along the path we have chosen. Best of luck. Dedee
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