minimaxwell Posted March 31, 2012 Report Posted March 31, 2012 First time 2/2/12 was just after starting Augmentin and Biaxin. Dr's were not sure what caused it,..virus,infection or rare reaction to Biaxin which was started 2 days before. That visit was scary,ICU for 3 days and another 5 in the hospital Then on 3/15 we did lVlG with Dr. K. Last night we ended up back in the ER,pain started again . we caught it early this time. Don't think it is connected with PANDAS but was curios if anyone else has this issue. They are going to do an MRI with contrast to look at ducts and see if there is any narrowing. All looks normal on Ultrasound,no gallbladder issues. Also will be doing some genetic testing.
fightingmom Posted March 31, 2012 Report Posted March 31, 2012 See if they can do hida scan for gallbladder. Ultrasound did not shown anything for me either but wound up having exploratory surgery to have gallbladder removed after two years of pain and multiple ER visits and misdiagnosis. My gallbladder was diseased and one of the worst my gastro had ever seen. Never had any evidence of stones etc but hida scan right before surgery did reveal it was not working properly. So sorry for you guys. How terrible.
fightingmom Posted March 31, 2012 Report Posted March 31, 2012 Also...my pain was always at its worst in the middle of the night. I would wake up from a sound sleep doubled over.
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