Constant Nausea

[socalmom]

DS 5 has " gut issues" and suffers from constant nausea. Any tips or ideas how to help?

[1tiredmama]

Aww, your poor baby! My ds17 suffers from nausea, too. After losing 20lbs in January, ds's GI put him on Carafate. It is a pink liquid taken on an empty stomach. It coats the stomach. It seems to be helping.

 

What have you done to investigate the source of your son's issues?

 

My son has had a sonogram, a colonoscopy and an endoscopy. Everything looks normal. He tested negative for celiac. Personally, I think my son's gut issues are neurological. I think that his brain creates the nausea. All of ds's other symptoms are neurological, so it just makes sense to me, in light of all of the normal gut findings.

[LNN]

My DD7 has had gut issues most of her life. Normal endoscope, negative for celiacs or ulcers or inflammation. Pepcid helped in the near term. 100mg Magnesium has helped with regularity, which is always a problem with poor diet.

 

I'm now looking into something called Dipeptidyl peptidase- 4 peptides which play a huge role in breaking down casein and gluten. I don't think we could ever go GFCF but I'm looking into a urine test to see if she has any sort of deficit and if digestive enzymes might be helpful.

[sf_mom]

In light of test results indicating Lyme and your son's recent herx response/petechiae rash. I would consider a comprehensive stool analysis via Metametrix. I am attaching a sample report to give you an idea of what information is provided to you on results. It looks at everything from good bacteria, bad bacteria, parasites, yeast, fungus, inflammation and digestive enzymes, etc. Next to the parasite results there is an explanation and symptom list of the following. "Parasite infections are a major cause of non-viral diarrhea. Symptoms may include constipation, gas, bloating, increased allergy response, colitis, nausea and distention"

 

http://www.metametrix.com/files/test-menu/sample-reports/GI-Effects-GI-Function-SR.pdf

 

If the result shows an unknown parasite, it is often an indication for our LLMD that Babesia is problem. My friends son was having similar issues, he does have Babesia and within a week of starting "Alinia" which is a anti-bacterial, anti-parasitic and anti-viral his stomach complaints stopped. He had stomach issues for a very long time... maybe over a year. He'll probably be on Alinia for several months in combination with other antibiotics. My children were on it for at least six months when we started Lyme treatment.

 

At some point, you also might consider doing some biofilm treatment to address those that are in the gut. However, I would do the stool analysis first and address obvious issues before starting. Busting biofilm's can create additional symptoms and you'll want his load down to make treatment tolerable.

 

Nausea and dizziness can be another indication he has babesia.. Have you checked his RBC recently? Count is often low or low end of normal.

 

Good Luck, Wendy

Edited March 31, 2012 by SF Mom

[dcmom]

Just throwin' this out there....

 

My older dd had constant perceived stomach discomfort, and ocd worries about going out with stomach ache, vomiting, etc. This issues started post- strep with her initial flare.

 

This all resolved with pandas treatment, and has not returned. I think it was a combo of sensory and ocd.

 

Don't know if this would be the case- but something to have on your radar.

 

(My dd had no physical symptoms - diahreea, vomiting, consitpation, etc)

[socalmom]

SFmom,

DS did a Metamatrix test ,only he was on antibiotics and I couldn't get a reading on the yeast/fungi results, but got some great info none the less!

 

DS has a parasite and babesia. Didn't realize Babesia could cause nausea! (this was never explained by my last Dr. who did the test!) He did RBC I will look to see if it's low, it was never brought to my attention, my new LLMD said he has babesia and is treating as such. I am so overwhelmed with my lyme and mold issues I struggle to keep track of things.

 

1tiredmama, love the name btw, I hope DS is doing better and has regained since losing weight. The only "gut work" I have done on DS is a stool test and removing gluten and dairy.

 

 

LLM, he's Neg. for celiacs. that was the first thing his old pediatrician told me to rule out as it sometimes causes tics I heard. Let me know how the digestive enzymes work, sounds promising.

 

 

 

dcmom, DS does have OCD, and worries about vomiting so I always wonder what's " fact from fiction" so to speak, but that's good you put that out there as I take everything into consideration.

Edited March 31, 2012 by socalmom

[sf_mom]

With both parasite and Babesia.... I'd ask your LLMD if you can treat with Alinia for a while until stomach issues and current parasite clear. You will get coverage with Alinia for Babesia. Also since you know he is positive the nausea could be cropping up as a herx response to treating infection.

I have had this nausea and so has a friend who is also positive for Babesia and anything salty.. saltines, pretzel and along some advil seems to help when it occurs.

 

Also I have heard running the stool sample while on antibiotics is a good thing since you want to understand what the gut looks while treating. You'll also want to repeat test at some point when officially off antibiotics.

 

Good luck and hope it resolves quickly. Wendy

[socalmom]

Alinia is working wonders, saw huge change in a lot of things after starting this. Thank you SFmom.

 

 

Sorry for turning it into a " lyme post' on a PANS board.