Combo Abx

[michelew]

Hello. This is my first time posting on the Lyme Board. My son was diagnosed with PITAND (Myco P.) triggered in Oct. 2011. Since that time, we have been treating him with 200 mg of Doxycycline & 500 mg of Azithromycin, then switched out the Azithromycin (seemed to stop working) for Biaxin. So now he's on 200 mg. of Doxy & 625 mg. of Biaxin.

 

His primary symptoms are neurological (extreme OCD, anorexia, angry all of the time, extreme sensitivity to sound, does not want to leave the house, etc.) He once was a perfectly, healthy typical boy, until about a year and a half ago, & is now completely nonfunctional.

 

He has shown very slight improvements since we started him on the antibiotics, but he is no where near the kid he once was. Now I'm wondering if he may have Lyme Disease, and if this is the case, should we be treating him more aggressively with antibiotics.

 

We had him tested for Lyme through Quest Labs, and we were told his test was negative for Lyme. I was okay with this, until I read that Quest is very unreliable. Also, my son's test did shown band 23 IGM to be reactive (IGG was negative) & also band 41 IGG to be reactive (IGM was negative).

 

I have noticed that it seems as though the Lyme doctors tend to prescribe MUCH higher doses of the abx with a Lyme DX, in particular when they have neurological symptoms like my son.

 

I am interested in learning what type of combo abx you or your children are taking & at was dose, in particular if you and/or your child is experiencing the neurological components of the disease. If you could also share age & size of your child, this would be very helpful.

 

Any input would be greatly appreciated.

 

Michele

[SSS]

Hi Michele,

I don't think any of us can really recommend which antibiotic combo's and doses, this is really a Lyme Literate medical doctor's decision, based on your child's infections and whole health

picture.

I just want to mention that a positive p23 band is very, very indicative of positive Lyme infection - our experience with our first Lyme test, and confirmed with the research I did on that particular Lyme only bacteria band.

We went on to further testing, and are now being treated by a LLMD.

It's not an easy road. But I truly believe unless we try our very best to eradicate these horrible, seemingly worst on the planet infections, our health and quality of life will only get worse.

 

I don't know much about Myco. P, as this hasn't been an issue for us, but while treating these kinds of infections, it is crucial to help support the body-

quality probiotics, detox methods, watch out for yeast overgrowth.

We are having a rough patch with my daughter, and while I don't feel great about this, I have been using ibuprofen 2x a day.

Hang in there---