phone consult?

[karenm]

having trouble finding dr.that knows about pandas. should we do phone consult with dr k?

[bulldog24]

Why not??

[Tenacity]

A phone consultation could be a BIG help. But if you can recruit your local pediatrician or local specialist to participate -- even better!...

[peglem]

Where are you? Maybe somebody can help out w/ some local resources.

[SSS]

I used to phone consult with Scott Smith (works with Dr. Neubrander out of New Jersey.). Scott is on (or was the last time I checked) a pandas advisory committee, and has 2 boys that went through pandas, and now treats it professionally.

Our treating pandas Dr. was out here on the west coast.

I really, really liked taking with Scott and picking his brain. He helped us out a lot.

JMO and experience.

ETA: Scott will not be able to prescribe anything for you unless he has a first time visit with your child in person.

Edited March 29, 2012 by S & S

[karenm]

Where are you? Maybe somebody can help out w/ some local resources.

[karenm]

We live in Winston Salem N.C.

[minimaxwell]

We met with Dr. T (he also does phone consults) . Then we did phone consult with Dr. K. At that point we had decided we wanted to pursue lVlG and go to Chicago. Getting approved was a problem b/c we had time restraints. At the last min. we found out that Dr. K would not provide the "clinical notes" our insurance co. were requiring. The reason was he had not actually seen my daughter in person. Dr. T was our hero yet again and spent over 2 hour on the phone with my insurance the night before we were to fly to Chicago. He appealed to the Medical director and got it approved for us! (btw, he would not even accept $ for doing this for us)

 

Dr. T will treat very aggressivly w/abx and IMO is the best Dr. to really evaluate the blood work. Dr. K seems to believe lVlG is the only answer.

 

Best of luck, keep us updated.

[minimaxwell]

Forgot to mention, I was able to get both Dr.'s approved " In Network" because I said there were no PANDAS specialists in my area. (we live near Boston!) Still not sure how much of their fees I will get back,but at least I will get some $ back. Our insurance is United Health which recognizes PANDAS. I have heard that some times you have to be careful about mentioning PANDAS to certain insur. co. Perhaps others can weigh in??