Headache 2 weeks after IVIG?

[lmkmip67]

The nurse called from the school today and said Ian had a pretty bad headache. I even talked to him on the phone and he was clearly irritated by it as he even stopped playing soccer during recess. So I know he wasn't trying to get out of anything or wasn't nervous about anything, he said he didn't know why. Is it possible for a headache to pop up this late after IVIG? He had a slight headache the day after, but so far in all 6 treatments has never has more than that.

 

Lisa

[JAG10]

Hi Lisa,

 

For what it's worth, I think this is a "good" sign. My dd12 has gotten headaches many weeks after IVIG. Her first infusion, she got the mother of all headaches the day after, but also headaches at 3 weeks post and 5 weeks after that (she actually was heading to field hockey, vomited in a bush, got a headache for 15 min and as fast as it appeared out of nowhere, so did it disappear.) The closer she got to "neurotypical", the less the headaches/nausea appeared.

 

Her first infusion was with Dr. K (5/2010) and when I told him of her fleeting bout of headaches, he celebrated.

 

Fingers crossed it is a sign the IgG binding with the bad stuff and doing its job!

Jill

[lmkmip67]

Huh, ok. I will take it as a good sign then. I wasn't aware it could pop up weeks after, but I am all for being positive! he also just started on a low dose SSRI, but that was almost 2 weeks ago, also. And he has not had any side effects from that, either. So I doubt it was that just out of the blue. he said it felt like the one he gets after the IVIG, so I will assume it is a good sign. thank you!