Current status of clinical trial?

[DeterminedMomVA]

Does anyone know the current status of the clinical trial? I know they're still recruiting new patients, but at what stage might they be able to release preliminary results? I thought I read on here a few weeks ago that they only needed a few more patients and they might be able to release something?

 

We're in the early stages of dealing with this disorder, but it would sure be helpful to have some encouraging results from the trial, especially when trying to get insurance to cover IVIG. I had a really informative discussion about the results of our labwork last night with DS's pediatrician, who asked if I knew anything about the status of the trial? He's very aware of it and interested in it. He's with a pretty big practice, and apparently DS is his third PANDAS patient. He's more comfortable letting the PANDAS experts take the lead in treatment, but he's been very helpful and really doesn't doubt the diagnosis. I know he'd like more definitive information, though.

 

I'm encouraged by the NIMH director's blog post today and all the other official NIMH things that have been released recently, which I think is a good sign, but does anyone know how close they are to any realeasable results?

[bulldog24]

roughly 2 patients away from being able to write preliminary results. i was told if they were overwhelmingly convincing, they would just stop the study at 16 and write it up.