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Posted

. My dd is scheduled for lVlG with Dr. K this Thursday. Today I started thinking about Lyme as a possible co-infection for her. She is tired all the time. Dr. T dx her as PANS myco as her trigger. He tested her for Lyme but it went to Quest so it was negative. I am driving myself crazy tonight. Should I test her for Lyme before lVlG with Igenex? Does insurance cover this usually?

 

Thanks,

Tiffani

Posted

Hi-

If you want to test for Lyme after the IVIG, it is best to wait a full 2-3 months after the IVIG infusion, when all the donor antibodies have left the body...

Best wishes.

Posted

Post IVIG there are test that can be preformed that don't look at antibodies like the urine Dot Blot or PCR available via Igenex. Or the new Lyme Culture but you would have to be off antibiotics for a minimum of 4 weeks. There are also co-infection PCRs via Igenex and blood smears via Fry Labs... again none of these tests look at antibodies.

 

Her fatigue might also be from one or more viruses. I would recommend testing for HHV6, CMV, EBV, Coxsackies 'Foot and Mouth', etc.

 

Good Luck on Thursday.

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