kansas city

[sosudden]

Hi! We live in Kansas City area. Anyone have experience with a PANDAS doctor in this area? Thanks!

[cub]

Hi! We live in Kansas City area. Anyone have experience with a PANDAS doctor in this area? Thanks!

Did you ever locate a Dr. willing to explore this? If so can you say who?

[Kimiejoe]

Yes! I am in KC too. Our ped office has one Dr that is getting into the PANDAS pursuit. He has met Dr Swedo and has been helpful with the other Dr we see in that office. His name is Dr Metzel.

 

Good luck and many prayers to you!

[sosudden]

Ahhh!!! We live in Kansas City!!! Please PM me and we can talk and compare notes!!!!

[Kimiejoe]

I tried the PM. Hope it worked!!

[cub]

I PM'd also. AND I am cautiously excited.

 

My son has been struggling with a virus for a couple weeks, and has also had much more tics and anxiety (a total blowout one night until he collapsed from exhaustion). I don't know that he has Pandas/Pans but I think it worth looking at even if it eliminates the possibility. I am cautiously excited that my Dr. agreed with ordering the titres test but then didn't because she wanted to investigate exactly what is needed. The Dr. prescribed Omnicef 300mg AM and PM because he has a sinus infection and flonase. Will taking the antibiotic now affect the titre test if it is done in a day or two? Also, have I read that he might possibly show an improvement being on the antibiotic that we might observe and then get worse when he goes off of it (the Dr. has it a higher dose for 8 days rather than 10 days) and that if that happened it would make a stronger case for it to be Panda/Pans?

Edited September 19, 2012 by cub

[cobbiemommy]

We are in KC area (St. Joe), but have no recommendations. We are travelling, but would love to know about a KC doc.

[Kimiejoe]

Dr Metzel is the only Dr I know of that is sympathetic to PANDAS patients. He is in the St Joe hospital bldg in KC.