sosudden Posted February 8, 2012 Report Share Posted February 8, 2012 Hi! We live in Kansas City area. Anyone have experience with a PANDAS doctor in this area? Thanks! Link to comment Share on other sites More sharing options...
cub Posted September 17, 2012 Report Share Posted September 17, 2012 Hi! We live in Kansas City area. Anyone have experience with a PANDAS doctor in this area? Thanks! Did you ever locate a Dr. willing to explore this? If so can you say who? Link to comment Share on other sites More sharing options...
Kimiejoe Posted September 17, 2012 Report Share Posted September 17, 2012 Yes! I am in KC too. Our ped office has one Dr that is getting into the PANDAS pursuit. He has met Dr Swedo and has been helpful with the other Dr we see in that office. His name is Dr Metzel. Good luck and many prayers to you! Link to comment Share on other sites More sharing options...
sosudden Posted September 18, 2012 Author Report Share Posted September 18, 2012 Ahhh!!! We live in Kansas City!!! Please PM me and we can talk and compare notes!!!! Link to comment Share on other sites More sharing options...
Kimiejoe Posted September 19, 2012 Report Share Posted September 19, 2012 I tried the PM. Hope it worked!! Link to comment Share on other sites More sharing options...
cub Posted September 19, 2012 Report Share Posted September 19, 2012 (edited) I PM'd also. AND I am cautiously excited. My son has been struggling with a virus for a couple weeks, and has also had much more tics and anxiety (a total blowout one night until he collapsed from exhaustion). I don't know that he has Pandas/Pans but I think it worth looking at even if it eliminates the possibility. I am cautiously excited that my Dr. agreed with ordering the titres test but then didn't because she wanted to investigate exactly what is needed. The Dr. prescribed Omnicef 300mg AM and PM because he has a sinus infection and flonase. Will taking the antibiotic now affect the titre test if it is done in a day or two? Also, have I read that he might possibly show an improvement being on the antibiotic that we might observe and then get worse when he goes off of it (the Dr. has it a higher dose for 8 days rather than 10 days) and that if that happened it would make a stronger case for it to be Panda/Pans? Edited September 19, 2012 by cub Link to comment Share on other sites More sharing options...
cobbiemommy Posted September 19, 2012 Report Share Posted September 19, 2012 We are in KC area (St. Joe), but have no recommendations. We are travelling, but would love to know about a KC doc. Link to comment Share on other sites More sharing options...
Kimiejoe Posted September 22, 2012 Report Share Posted September 22, 2012 Dr Metzel is the only Dr I know of that is sympathetic to PANDAS patients. He is in the St Joe hospital bldg in KC. Link to comment Share on other sites More sharing options...
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