boychildsmom Posted February 7, 2012 Report Posted February 7, 2012 Leroy's local news editor is polling the masses...what do you think is causing the "mystery" symptoms? Let's all participate! http://thebatavian.com/
MomWithOCDSon Posted February 7, 2012 Report Posted February 7, 2012 I tried voting, but the number of PANDAS/PANS votes did not go up after I did. So I tried going in again and voting again. It doesn't seem to be taking my PANDAS/PANS vote no matter how many times I go into the page, fresh. But I noticed the number of votes for Conversion Disorder DID got up a couple of counts as I was logging in repeatedly. C'mon! What's up with that?!?!
911RN Posted February 7, 2012 Report Posted February 7, 2012 Quoted from the article, bolding is mine----"Trifiletti said he was recommending a regime of antibiotics and anti-inflammatory agents, and Mechtler said the prescriptions will work for the patients, if they believe in Trifiletti. He compared the treatment to a placebo and a religious ceremony. Since conversion disorder is a psychogenic illness, if the patients are hyped into believing a treatment will work, it will work. And if that's the outcome, that's a good thing, said Mechtler. "At the end of the day, all I want is to see the patients get better," Mechtler said" THIS GUY IS GOOOOOD. He is covering his butt at all angles. UNbelievable!! So, if they get well with Dr T's treatmentt it is still CD, not PANDAS. Because that is how CD works---if you believe you will get well with a treatment- you will. Not because it was the RIGHT diagnosis with correct treatment. What a convenient diagnosis for him (CD)- think a treatment will work- you will get better- poof! He is RIGHT regardless of what the cause. How tidy and convenient. So.....why has he been unable to convince the girls to get better with HIS treatments. Oh, and what exactly is that treatment???? For those of you old enough to appreciate the ole' Saturday Night Live Dana carvey "Church Lady" segments- I can imagine myself doing an entire segment on this How conveeenient!!! You are right no mattter what.... so you say, Dr M....hhhmmm, how convenient! Furthermore, I have never liked Dr Drew. He treated Dr T very condescendingly on program last night. While, I appreciate his willingness to air this debate to get to the bottom of it "to help these girls"----it is all about ratings!! He can act all concerned but when there is an opposing view from CD- he cuts them off. Many of these girls were pretty, popular, active, cheerleaders, soccer players etc in their latter days of High school- what teenage girl is going to want to turn into a freak with ticcing and verbal outbursts if not beyond their control from a real medical source. Defies pure logic. C'mon people- give halfway intelligent folks a break. These docs' house of cards is falling. IF some of these girls get well with antibiotics and antiinflammatories- they will still claim CD but they will be shown for the arrogant, narrow minded pri2ks that they are!!! I have worked with these types for 25 years as a nurse and taken my son to these types (but not for long)...they are not gonna change. Can only be revealed for what they truly are with this type of event. Why doesn't Dr M give them some sugar pills and convince them it is going to make them well if he is going on the placebo theory. He has had since October to do so- hhhmmm? Again, more Church Lady Enought of my rant- have followed all the forum coverage on this topic. Rarely weigh in- had to get this off my chest. HOW CONVENIENT!!!!
thenmama Posted February 7, 2012 Report Posted February 7, 2012 The votes for PANS seem to be registering for CD/MPI. I just documented the process, so have evidence to dispute the poll results. Not that they matter-- it's a public opinion poll about a medical diagnosis-- who cares what people think! Don't think I'd want my medical issues determined by a blog audience I suspect the reason the Mechtler articles and nonsense polls, etc. keep popping up there is that the small time Batavian is enjoying a substantial spike in site traffic and what it does for their site profile, revenue, and/or their egos. Or there's some sort of Dr CD love fest going on behind the scenes there...
nicklemama Posted February 7, 2012 Report Posted February 7, 2012 Beth Maloney sent out a press release for Dr Trifiletti and is asking everyone to forward it on to their local media, which I did. If we all put this out there, we'd have mass coverage of PANDAS/PANS and those who are comfortable could share their story to their local press.
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