colleendonny Posted January 9, 2012 Report Posted January 9, 2012 My non PANDAS, I hope, has had light sensitivity issues for a while now. And since I have been "looking" for it, I have noticed dilated pupils here and there... They will always get smaller when I ask him to look at the light. They are mainly sensitive when I change his diaper and he is laying flat, or when we are in the car and it is sunny. Any thoughts for me?
Bill Posted January 10, 2012 Report Posted January 10, 2012 My non PANDAS, I hope, has had light sensitivity issues for a while now. And since I have been "looking" for it, I have noticed dilated pupils here and there... They will always get smaller when I ask him to look at the light. They are mainly sensitive when I change his diaper and he is laying flat, or when we are in the car and it is sunny. Any thoughts for me? My son was 7 when we first noticed dilated pupils. With time, his pupils were pretty much dilated all of the time. As I remember reading, many PANDAS kids are sensitive to light - I presume because of the pupil dilation. Not only were my son's pupils not reactive to light, he had zero light sensitivity. None of the doctors knew what to make of that. His pupils are pretty normal now. He's the only one in the family who does not need glasses or have any vision issues. He's close to 14. (Many PANDAS kids are also sensitive to sound. In comparison, the louder the TV, the more my son liked/likes it. His hearing tested fine.) My only thoughts are that it does not sound alarming. Perhaps he/she has some allergies causing light sensitivity? Worth keeping an eye on (no pun intended) though.
colleendonny Posted January 11, 2012 Author Report Posted January 11, 2012 My non PANDAS, I hope, has had light sensitivity issues for a while now. And since I have been "looking" for it, I have noticed dilated pupils here and there... They will always get smaller when I ask him to look at the light. They are mainly sensitive when I change his diaper and he is laying flat, or when we are in the car and it is sunny. Any thoughts for me? My son was 7 when we first noticed dilated pupils. With time, his pupils were pretty much dilated all of the time. As I remember reading, many PANDAS kids are sensitive to light - I presume because of the pupil dilation. Not only were my son's pupils not reactive to light, he had zero light sensitivity. None of the doctors knew what to make of that. His pupils are pretty normal now. He's the only one in the family who does not need glasses or have any vision issues. He's close to 14. (Many PANDAS kids are also sensitive to sound. In comparison, the louder the TV, the more my son liked/likes it. His hearing tested fine.) My only thoughts are that it does not sound alarming. Perhaps he/she has some allergies causing light sensitivity? Worth keeping an eye on (no pun intended) though.
colleendonny Posted January 11, 2012 Author Report Posted January 11, 2012 Thanks Bill, I hope it is nothing. This whole PANDAS diagnosis, has me dissecting everything. He is sensitive to loud noises and will cover his ears. It is not often, but I do recall a few instances. Anyways, I am bringing him to the eye doctor tomorrow to se if they find anything. He has been complaining of bellyaches lately too. Wonder if maybe he is allergic to something? We see Dr.B again in Feb. and we are bringing along my son as a "new patient", to get some bllod work on him as well.
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