DS kinda checking out

[cobbiemommy]

DS, 12, has started Mepron (again) with Zithromax with a lower dose of Minocycline. He kind of checks out for a little while, then bursts back with lashing out and OCD type behavior. His appetite is way down and he is sleeping 11 to 12 hours while on vacation.

 

This just seems so ODD. I can't quite describe it, it's like he is a restless soul going from TV to computer to reading to LEGO building. I tried to get him to go walking with me, but no dice on that. He is just kind of flat in demeanor. Is this how it looked like for any of you??

 

He is on a low dose of Mepron (only 1/4 tsp 2X day), building towards 1 tsp twice a day.

 

Any insight would be appreciated.

 

Cobbie

[Suzan]

dd10 did something similar on augmentin. She got listless and non-responsive and slept a lot. The doc took her off and put her on something else and she perked up. It was very scary.

[sf_mom]

We too are building toward 1 tsp of Mepron x 2 day for younger DD. It has been a unique herx response to date... She does not typically suffer from OCD and only had some reassurance hugging when we first started treating Lyme. After starting Mepron, she started hoarding, wearing several layers of clothing, repeats a few particular outfits of dance wear or princess outfit under her tops and carrying several bags stuffed with odd things around with her. She is taking her brothers clothing and stuffing them into her dresser, etc. She is also slurring her words again and often sitting with her tongue hanging out, mouth open. Things seemed to settle after about 6 weeks but we just upped her to 3/4 tsp two days ago and she already has an increase in mood liability.

 

I can assure you from my own treatment of Babesia, I too at times don't feel motivated or like doing much. I am often overwhelmed by too much background noise or intolerant of too much activity.

 

My best advise is to focus on as much detox as possible. I have also been very fatigued and even needed two naps in one day. We are also cyst busting and treating biofilms so it might be contributing to my current symptoms... but treating Babesia has been by far the toughest on me.

 

Wishing you all the best as you build dosage.

 

-Wendy

[Suzan]

How is he doing now?

 

Susan

[cobbiemommy]

He is still kind of checking out, but he started with the sweats today. We are only up to 1/2 tsp. twice a day, but I think he is going to see some progress. Keeping our fingers crossed.

 

Cobbie