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Posted

My daughter is having belly pain often. We did check liver enzymes about a month ago and they were fine. She takes Zith & Bactim currently & is scheduled to see Dr. Jones in Jan, for co-infections, that I'm afraid will mean more or even changed ABX. Anyhow, the pain seems to be cramp like & i've always thought maybe she just needed to have a bowel movement. Last night however, I was shopping with her & she was fine & suddenly she started to cry out in pain. I got her to a bathroom and she urinated & at first was still irritable, saying not to talk to her b/c her pain was still there, but not as bad. I taught her to rate the pain on a scale some months back & she told me that her pain was a 10 before she urinated & that she felt like she couldn't breath it was so bad & that after she urinated it was a 2 or 3. Am I missing something? I figure with all the ABX it could not be an infection, but she has never tied this pain to the need to urinate before. I am so worried about what to do here. I've been to the ped twice about the belly pain & he said last time we could get an xray to see if it's stool that's backed up. I really don't think so, b/c she is regular. ANy other ideas or similar stories.

 

Thanks,Amy

Posted

Amy,

 

When my dd had trouble with that combo and her liver, she had nausea/stomach pains and headaches.......... and no behavioral changes. Have you changed the dosages of either abx since the ALT and AST were measured? Maybe you could have those checked again.

 

Jill

Posted

Absolutely.

 

My dd refuses to continue her abx. She did very well on it for about 8 weeks. Zithromax is known to cause belly pain.

Unfortunately, my dd has slightly backslid, we think strep in the house did not help her :( Trying herbal supplements now.

Posted

Amy,

 

When my dd had trouble with that combo and her liver, she had nausea/stomach pains and headaches.......... and no behavioral changes. Have you changed the dosages of either abx since the ALT and AST were measured? Maybe you could have those checked again.

 

Jill

Jill,

I remember your daughter's symptoms & that's why I waited even a few extra weeks to do the liver testing. I did not increase the meds, no changes. I'm worried if it could be colitis issues creeping up. After all, it's been nearly 3 years of ABX in some form or another. She was home from school Friday with GI issues too.

 

Amy

Posted

Hi - I think I would still check for UTI and also maybe do a stool test for c-diff (and maybe others?). When my ds4 had bad cramping pain with no diarrhea or nausea it was c-diff and we were being good about backfilling with probiotics but really upped the amount after that. mind you it didn't go upon weeign either tho'

 

Also wonder if something else mechanical might be happening.. where the pressure of a full bladder may be squishing something. After a c-section (dd) I would get bad cramping pain every few days associated with needing to wee. It lasted maybe a year. I still get it sometimes in the a.m. with very full bladder.. the only thing I have that I know about is diverticulosis (had diverticulitis couple of years back)..

 

good luck, hope you track it down

Posted

Amy- I am just going to throw this out there FWIW-

 

I have 2 girls with pandas. Oldest's initial onset was very mild. She remained mostly functional, if a little moody. She had some ocd she hid. Her major issue, though, were stomach aches. They were on and off all day, and eventually made her not want to go anywhere. She didn't seem to be having unusual symptoms in the GI dept other than the stomach ache complaints. (she did have occasional loose bowel movements). We did GI appts and tried diet, etc- nothing helped.

 

Eventually we realized it was pandas. Pandas gave her some heightened "sensory issues" in her GI system. Her stomach "hurt" when she was hungry, or after she ate, or before and after a bowel movement. In other words, any time there was any "action" down there, she either felt, or read it as pain. OCD wrapped around this and made her stress on it, and not want to go out because of it.

 

This was her initial onset- one month of zithromax and this issue disappeared, and (fingers crossed, thank goodness) it hasn't returned in almost three years.

 

So- of course, rule out anything physical (we did)- but keep in the back of your mind that pandas can cause all sorts of issues....

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