PowPow Posted November 28, 2011 Report Posted November 28, 2011 Anything about glutamate interests me. Daughter is on riluzole now. Any info you can expand on? thanks
PowPow Posted November 29, 2011 Report Posted November 29, 2011 Well- hard to attribute anything to one particular cause right now. she is one month post pex and just finished (today) one month of Clindaymcin. She has just started valium and riluzole about 10 days ago. I am so thrilled at how she is doing. To the average (read- non-PANDAS parent) there is much to be desired. We have very specific, quantifiable improvements. I am so hopeful. She did do riluzole about a year ago and I think it was helpful then. She only took it for about a week, though, and then refused it. I really hope the Namenda helps. I think someone on here (Melanie?) has a child who uses Namenda.
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