still waiting for improvement

[mtmom]

We are still waiting for improvements after 5 weeks IVIG. We see nothing but more and more PANDAS symptoms. I miss my little boy.

[Rain]

I'm so sorry to hear that. Don't lose hope, we saw nothing until about week 8 post IVIg - and he started a dramatic improvement. Now we're at week 12 and having a little backslide this week. I know it's not easy, but hang in there.

[kimballot]

We are still waiting for improvements after 5 weeks IVIG. We see nothing but more and more PANDAS symptoms. I miss my little boy.

 

My son did not do well after IVIG initially. He started doing better when we changed his antibiotics. In our case, a lyme doctor helped us with antibiotics, but his immunologist also agreed with the change.

 

Is you child on antibiotics?

[mtmom]

Thanks for the hopeful posts. It can be so discouraging. My son is on a low dose of Zith. I am worried though because we have had illness (virus) in the house. the doctor says it is flipping but what if it is a PANDAS flare up. How are you suppose to now the difference?