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Posted

We have finally been able to afford to take our son to Dr. Price in Saco, Maine. We felt this is a last ditch last resort as he has tried antibiotics, steriods, and ibruprohen. Sadly with the antibiotic he showed some improvement, with the steriod he showed drastic improvement, but both caused extreme side effects.

 

Can anyone tell me if they have seen Dr. Price? Did they find her helpful? What information can I provide to her to make best time of our appointment? We are driving almost 3 hours, but only have an hour with her and I want to make sure it is successful!

 

Thanks so much for any information.

Posted

We have finally been able to afford to take our son to Dr. Price in Saco, Maine. We felt this is a last ditch last resort as he has tried antibiotics, steriods, and ibruprohen. Sadly with the antibiotic he showed some improvement, with the steriod he showed drastic improvement, but both caused extreme side effects.

 

Can anyone tell me if they have seen Dr. Price? Did they find her helpful? What information can I provide to her to make best time of our appointment? We are driving almost 3 hours, but only have an hour with her and I want to make sure it is successful!

 

Thanks so much for any information.

 

Dr. Price recently 'cut us loose." When antibiotics didn't work, or IVIG, she basically didn't want much to do with us. When I offered ideas from research I'd read, it was often met with not much excitement. She finally told us when denied for PEX that she wasn't going to do much of anything and we should go somewhere else. Yes she gave anti biotics, IVIG and tried to get us PEX (to shut me up from bothering her with ideas) but she gave up on us. Dr. Wu, on the other hand had lots of "outside the box ideas" and was open to any ideas when we were at a stand still. He recently prescribed the Respin A patch for us (see other post) and is determined to fix this. I think we received needed things from both.

 

You and I discussed insurance off line and I know he does not take yours. The first visit is about $200, but he will call and help a lot after without additional charges. he treats both PANDAS and Autism and knows a lot about neurotransmitters which I think if antibiotics don't work, are a vital part of this. But if your child can't take them, she won't be much help as she knows nothing about natural supplements to fight infection. Dr. Wu takes about 6 weeks to get in. His follow up appts are $115, but again will call you himself and guide you along the way in between. He's about 20 closer to you too.

 

Nancy

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