Another mystery

[peglem]

So,as background, Allie has been on synthroid just short of 6 weeks. Her cerebral palsy looking hand/arm cramps went away @ a week after starting that. Then, just as the hand stuff was gone, we started using imitrex nasal spray as a rescue med for migraine w/ great success. But, I find that in order to stave off headaches (and avoid over-use of the imitrex) it is necessary to dose her 1st thing in the AM and at bedtime w/ prescription strength naproxen + a dose of ibuprofen mid-day. This much NSAID worries me...but she needs pain relief- I try daily to avoid the afternoon ibuprofen, but she ends up needing it. If I cut the bedtime dose, she wakes in the middle of the night w/ a headache.

 

Anyway, Allie's usual OCD is fixation type, where she gets "stuck" on an object and cannot leave it, even though it causes her great distress. For the last 2 weeks or so, she's been getting stuck on objects, but in a very trance-like state. I can sometimes break the spell by snapping my fingers in front of her face. If I don't interfere, the trance can go on for quite awhile- 4o minutes before I finally stopped it the time I tried to see how long it would last. What I can't figure out is if this is just her old fixation ocd, minus the anxiety, or something entirely new. Her overall anxiety level is greatly reduced.

[smartyjones]

peg -- i don't know if this will help -- ds7 just had a terrible stressful few days at school. he's not there now -- he wasn't so much affected at the time in a PTSD manner, although i was. a few days later, he was very wound up and getting a bit out of control.

our pscyh discussed that for an anxious kid when all is out of control --esp adults -- he will certainly spin off. we started very deliberate, exact, clear delineation of rules, behaviors etc to rein him in.

 

we also were seeing a bit of the asperger-like symptoms that ds has displayed in the past with onset and exacerbation. my theory is stress and breach of BBB. (i believe if we didn't know pandas, he'd have asperger label even though even in exacerbation, he doesn't fully fit).

 

we started intense motrin -- yesterday was day 5 and now we are lowering. the past few days, i have noticed a bit of a spacey, trance like times -- not for terribly long nor terribly often. it's been rainy and many leaves falling from trees that are kind of hypnotizing to me too -- but i have noticed him staring off at times. i was wondering if it was an effect of the mortin -- either making him tired or contributing to this trance-like times.

 

keep me posted if you discover anything from drs or have theories yourself.

[peglem]

If I try to reduce the NSAIDS she ends up with headaches. Even w/ NSAIDS she still gets them sometimes. Like this morning, she was up @ 3 or so- but went back to sleep when I got up w/ her. But first she ripped her clothes off- like she was too hot (and its not hot right now, even in the desert). But, I have to give her synthroid by itself on an empty stomach and not give anything else for at least 1/2 hour. Then, I gave her the naproxen, and waited @ 45 minutes to see if that would help...she wasn't screaming in pain- but you could tell it hurt to open her eyes, even in dim light, and she kept covering her face up. The imitrex helped. She had dental work last week, so that's probably contributing, and rubbing her gums seemed to soothe her. I just don't know if she's sick or not- so hard to tell when typical immune reaction aren't present. She's getting an MRI of upper extremities tomorrow AM, and will have IVIG on Monday. She does seem to begin a flare up when she's due for IVIG.