Continued progress!

[laure]

Laura,

I'm tearing up reading your daughter's story. I remember how bad she was last year & how desperate you were to find treatment. My daughter is doing well with treatment for co-infections as well. For the first time in 3 years I can say she is symptom free of tics and the OCD anxiety symptoms that were starting to creep in. My daughter was definitely on the mild side, but I will never doubt that it is because I found this forum and got her dx. & tx. so early. Your daughter's story is one so full of hope for kids who have been lost to neuropsychiatric disorders caused by infections. We went to the local media to share our story & it will air in Binghamton on WICZ fox 40 on Nov. 23. It will be available on the their website after 7 pm that night. ANother family that we know, whose daughter is close in age to yours, will also be featured. SHe was much more severe & has total turn around too after ABX & IVIG. It should be an amazing story!

 

You have so much to be thankful for this Thanksgiving!

 

Amy

 

 

YES we certainly do have a lot to be thankful for Amy! I will definitely watch that story...will it be on PANDAS, lyme, or both? I really think the parents in CNY need to be aware of lyme disease in our area and how rampant it is becoming. Certainly our docs at Bassett Health Care had no idea. I shudder to think how many kids are affected. Happy holidays and enjoy that healthy girl!!!

[AmySLP]

Laura,

I'm tearing up reading your daughter's story. I remember how bad she was last year & how desperate you were to find treatment. My daughter is doing well with treatment for co-infections as well. For the first time in 3 years I can say she is symptom free of tics and the OCD anxiety symptoms that were starting to creep in. My daughter was definitely on the mild side, but I will never doubt that it is because I found this forum and got her dx. & tx. so early. Your daughter's story is one so full of hope for kids who have been lost to neuropsychiatric disorders caused by infections. We went to the local media to share our story & it will air in Binghamton on WICZ fox 40 on Nov. 23. It will be available on the their website after 7 pm that night. ANother family that we know, whose daughter is close in age to yours, will also be featured. SHe was much more severe & has total turn around too after ABX & IVIG. It should be an amazing story!

 

You have so much to be thankful for this Thanksgiving!

 

Amy

 

Laura,

we really struggled on deciding to mention the Lyme or not & chose not, b/c we haven't even seen the LLMD yet & Allison has co-infections (borderline positive). It's still hard for us to digest. What I know for sure is that my daughter had strep for over 6 months & then EBV. I really wanted to stress in the piece that mental illness can be caused by infections. hope that makes the cut. You really are at the mercy of the reporter. It's not liek we could preview and approve what airs. I just hope our messages are clear. Sometimes the things I rehearsed in my head before the interview just did not come out quite the way I planned. Happy Thanksgiving!

 

Amy

 

 

YES we certainly do have a lot to be thankful for Amy! I will definitely watch that story...will it be on PANDAS, lyme, or both? I really think the parents in CNY need to be aware of lyme disease in our area and how rampant it is becoming. Certainly our docs at Bassett Health Care had no idea. I shudder to think how many kids are affected. Happy holidays and enjoy that healthy girl!!!

[laure]

Hey that was a great show Amy, watched it online the next day! So glad you helped to get the word out, and yes, I agree, doctors and parents just need to know to CONSIDER the possibility that a condition that resembles a psychological or psychiatric illness may very well just be an infection, curable with antibiotics. Huge strides in that direction, thank you so much!