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Posted

I have chronic migraines from Chiari Malformation myself. In fact, just took imitrex an hour ago. That said, it worries me that the doc prescribed it off label. Did you ask why? It can be a very dangerous drug with nasty side effects. It also will lose effectiveness if used more than a few times a month and cause rebound issues (with headaches anyway). My son has started to have some migraines and I would be terrified to give him imitrex. Luckily, motrin works for him.

Posted

I have chronic migraines from Chiari Malformation myself. In fact, just took imitrex an hour ago. That said, it worries me that the doc prescribed it off label. Did you ask why? It can be a very dangerous drug with nasty side effects. It also will lose effectiveness if used more than a few times a month and cause rebound issues (with headaches anyway). My son has started to have some migraines and I would be terrified to give him imitrex. Luckily, motrin works for him.

Well, I don't think it was really off label- she saw in the office a meltdown that looked to her like my daughter was in pain. For @ the month prior, my daughter had been having these spells where she was screaming and thrashing about and it looked like pain to me too, but since she can't talk...

Anyway, the neuro prescribed it, thinking that if it worked, then she would know if it was pain or not. We have 12 low doses to use for the month. I called to clarify "as needed" (cause it seemed like she needed more than 12 doses because this was happening a few times a day). We were told we could give a dose, then if she needed it 2 hours later, another dose, but not more than 2 doses a day and not more than 3 doses/week. The good news is...she hasn't needed it after those 1st three doses in the 1st 2 days (those 3 doses combined were just 3/4 of the maximum allowed in 1 dose). So, I guess it broke the cycle!

My daughter is already on rx naproxin, which was not preventing these. The neuro did say to continue the naproxin, and use the imitrex if that is not sufficient.

Posted

Oh Okay - I'm sorry! Like I said I haven't been here in a while and am out of the loop ;) Good point because if I were non verbal, I would be freaking out in pain too! I misunderstood and thought it was for behavior, which seemed odd.

 

Naproxin is not likely to help a migraine. Only triptans will truly help. I hope it works well!

Posted

Oh Okay - I'm sorry! Like I said I haven't been here in a while and am out of the loop ;) Good point because if I were non verbal, I would be freaking out in pain too! I misunderstood and thought it was for behavior, which seemed odd.

 

Naproxin is not likely to help a migraine. Only triptans will truly help. I hope it works well!

Yeah, our problem has been that professionals keep sending everything to behavioral health instead of figuring out the medical stuff causing the behavior. This was so refreshing! And, I think the neuro was thinking that if the naproxin (or ibuprofen which we use instead sometimes)doesn't help, its not a regular headache. It was very exciting to see Allie get some relief when we used it.

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