anyone been UPenn?

[PowPow]

I know that somewhere I have read (on the forum) about docs at UPenn, not being PANDAS-believers- that part is not my concern... I am really wondering if one of my daughters does really have PANDAS-- I really feel like there is something more going on here.

 

We are having some more testing and PANDAS treatment done (which is the same kind of treatment for any kind of autoimmune/paraneoplastic encephalitis)-- but I am thinking about going there for an evaluation-- to neurology, I guess.

 

I have found case reports of multiple NMDA case reports that sound eeriely like our own.

 

any one been there?

Edited October 24, 2011 by PowPow