MSmom Posted October 12, 2011 Report Posted October 12, 2011 No, we haven't done steroid treatments. Yes, we tried several other antibiotics. My daughter (and son) both have quite a few physical ailments (immune and metabolic.) They are older (teen and early twenties), so the late diagnosis has probably hindered recovery. The autoimmunity has just gone on too long I think. MsMom Forgot to answer the second part of the question--yes, we use Motrin all the time for some relief (but doesn't help much.) I wish there were a simple answer like antibiotics or IVIG. We've done both, and both worsened the condition for us. MsMom Have you tried any steroid treatments? If so, did your DD improve with that? I think this is the first time I've seen somebody say that neither abx nor IVIG have helped at all. So you tried abx other than Augmentin? Does your DD have any other conditions that could further complicate the PANDAS or its treatment?
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