Antibiotics

[mtmom]

I am new here! I have been reading posts here as a guest for a while. You all are very helpful and informative.

 

My son, 7 has been diagnosed by Dr. K with PANDAS. We unfortunately have been looking for answers for our sons sudden onset for a year and three months. It has been a long road but we feel we are in the right place. As you have guessed Dr. K wants to do IVIG. However the process is taking so long. We are in the process of waiting for him to write a letter for our insurance company. One day seems like a year at this point. DS suffers with Obsessive language, school refusal, agitation, aggressiveness, tics, separation anxiety, sleep depreviation, anxiety. He hasn't learned a thing at school in a year.

 

We see others on this site that are able to get antibiotics. So our question is We are in Chicago...does anyone know of a dr. who is Pandas friendly in this area? we are interested in trying antibiotics while we wait for the IVIG to happen.

[beeskneesmommy]

I would highly advise that you attempt abx prior to going straight to IVig. I find it disturbing that this has not been offered or at least recommended. There are kids who DO get better with abx. Further testing would be a good idea as well, to make sure that there are no co-infections. There are several other infections that can cause or exacerbate PANDAS. IVig is a great treatment and many have benefitted from it. However, it is usually not a one time "cure" and many need to return to have further treatments. It seems that, since you have to wait for IVig anyway, trying abx in the mean time would be a smart choice. Below are the only referrals that I have in Ill., and know nothing about them except that they treat PANDAS. Good luck! -Kath

 

Karen Onel, MD

Center for Advanced Medicine

5758 S. Maryland Avenue

Chicago, IL 60637

http://www.uchicagokidshospital.org/physicians/physician.html?id=6204

 

Anjum Usman, M.D.

603 East Diehl Road Suite 135

Naperville, IL 60563

Phone: (630) 505-4040

Fax Number: (630) 505-9847