Sleeping issues/nightmares/nighttime incontinence

[AmySLP]

My 7 y/o daughter began to have exacerbation while at Disney approx 2 weeks ago, despite prophylaxis ABX. Anyhow, this has progressed to nighttime waking due to bad dreams at approx 3 am each night, keeping her awake for 1-2 hrs. Twice now she's had some night time incontinence (we have only had this with one other exacerbation in 3 years dealing with PANDAS). Should I be considering melatonin? We changed ABX based on pediatrician's suggestion & her tics have decreased, as well as emotional lability. Hoping that we will all get a full night's sleep tonight.

 

thanks,

Amy

[kimballot]

Amy - you could certainly try melatonin to get you through this. There is an extended release version (I actually just bought it for the first time - will see how it goes)... it is supposed to be better for nighttime waking.

 

I am assuming you have been in touch with a PANDAS doc about this. I can't recall if you dd has underlying lyme. Do you think this is still from an infection or do you think this is autoimmune "life of its own" at this point? I am asking because I am wondering if a PANDAS doc might recommend prednisone as an option for you.