brett Posted November 28, 2005 Report Posted November 28, 2005 Hi Claire, I have been posting about my son Jesse for a week now, my name is Brett. I wondered if Sheila Rogers is still doing phone consultations? I have spent many hours on this site reading about all of the different treatments and truly it is overwhelming. I am wondering if it would be more helpful for me to speak with a knowledgable individual, to go over my entire son's history, and get her feedback before I start dragging my son to more doctors. From what I have read on this site, there are so many different possibilites that could be causing my son's tics I wonder if I laid all of the info out for an expert if I could then be pointed in the right direction. Right now my son is on Tenex (an anti-hypertension medication) to at least have him function, but still there are many involuntary movements, and the neuro's only want to prescribe even stronger medication that I reject. They don't seem to want to get to the root of what is causing his issues, only to prescribe meds? From what I have read on this site, my son's tics could easily fall into a number of different causative factors (excessive illnesses as a baby/child, excessive antibiotic use as a child, overstressed, too much tv/screen time, yeast, poor diet, etc.), as well as 2 neuro's telling me he has PANDA even though his anti-strep titers came back negative! And putting him on antibiotics that I am debating whether to give or not. So if you have the chance with advice, I would appreciate it. Thank you so much for all of your helpful links on this site. Brett
ad_ccl Posted November 29, 2005 Report Posted November 29, 2005 Hi Brett, As I mentioned in another post - sadly Claire has moved on to greener pastures ( sadly for us) She has been an amazing support to so many - and we are fortunate to be able to access her many many many posts. I did not want you to think Claire was not replying. She has been known to "pop in" periodically. If you read my New Here thread you will find many posts from Claire - and since our experiences have been so similar you will probably get a lot of great info regarding tests etc. She was very patient with me - and many others - and repeated herself over and over - answering each of my questions - even if it was the third time I was asking it. Can you tell I miss her....
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now