Should I call the doctor?

[lmkmip67]

Ian is going in for his 3rd IVIG this coming Monday. He has not been seeing any improvement at all this time and the last week or so has gotten worse. About two days ago he started to sound either congested, or hoarse. He is already on a full treatment dose of augmentin already, so I didn't think too much of it, just thinking it might be a virus. He has NO signs of illness except increased PANDAS symptoms and the hoarseness. So I think something is going on, but he has no fever, no runny nose, nothing. He is feeling just fine despite more tics, grumpy mood and OCD. We are seeing Dr. B on Tuesday after the IVIG, so I hesitate to drag him into the regular doctor for a simple virus, since he is already on antibiotics. Thoughts? It kind of explains why he is worse, but still after 2 IVIGs I would hope he would not react to illness as badly at this point.

 

Lisa

[JAG10]

So sorry, Lisa! Something is certainly going on with him. I had a similar experience with my dd11 a week before her ivig in April, I think. She had a friend spend the night (little sleep) and woke up all goofed up the next day. I thought it was the lack of sleep, but it just kept going. I reported to Dr B what happened, and this is when he added the Bactrim bcs her Bartonella was questionable. By the time we got home from IVIG, my younger dd8 was exhibiting symptoms too, it was strep.

 

It will be interesting to see if you observe any change when you begin the prednisone pre-treatment in a couple days.

 

It is so hard to watch this unfold. The ivig will get him back on course. He is sick, he can't help it. You and your dh are doing everything you can at this point. You have a few more days to get through. Maybe plan a couple fun things to get his and your mind off of the symptoms. I know, easier said than done.

 

A good friend on this board sent me a card once that said "when you feel like you're at the end of your rope, tie a knot, hang on and swing."

Well, at least hang on.

 

Prayers & hugs

Jill